This family is very special to me. Canyon is a shining light, and so inspiring! He is positive, upbeat and so stinkin’ cute. Please read his story and share it. Maybe through you he will find his perfect transplant match!
Words from Canyon’s mom:
Few things in life are as hard as watching your child go through difficult times. Canyon was diagnosed with a chronic form of kidney disease known as Focal Segmental Glomerular Sclerosis (FSGS) in May of 2017 at age 11. The doctors believe that Canyon was most likely born with this condition and that it slowly got worse as he got older. While Canyon will never regain the kidney function that he has lost due to the disease process, dialysis and medications will serve to replace some of the kidney function until he can receive a transplant.
Canyon does 9 hours of peritoneal dialysis every single night through a catheter placed in his peritoneal cavity. This involves filling his peritoneal cavity with 10,000mls of dialysate solution throughout the night as he sleeps. This solution helps absorb waste products from blood vessels in his abdominal lining and then it is drawn back out of his body and discarded in the morning. Every month we have approximately 40 cases of this solution delivered to our house along with other dialysis and care supplies such as drain bags, cassettes for his dialysis machine, gloves, masks, bandages, syringes, and countless medicines.
Canyon’s life has changed tremendously since being diagnosed with kidney disease. Childhood food favorites such as pizza, french fries, ice cream, soft drinks, and chocolate are now off limits due to his failing kidneys. He has even had to give up his favorite candy, Reese’s Peanut Butter Cups, because of this disease! He now has to read labels to limit his potassium, sodium, and phosphate intake each meal. He can no longer go swimming due to the risk of infection to his catheter site. Sleep-overs are few and far between now due to the nightly dialysis treatments. Because Canyon’s kidneys are largely unable to regulate his blood pressure, he can no longer participate in a lot of sports or physical activities with his peers.
Even though this diagnosis is life-changing, Canyon still has a smile on his face every single day. He is now planning on becoming a Pediatric Nephrologist so he can help other kids like him! For now, our hope is to get him a transplant. There are currently over 93,000 people on the transplant waiting list for a kidney. Please consider becoming an organ donor to help kids and adults like Canyon have a long and fulfilling life.